{"id":2585,"date":"2021-02-08T14:25:50","date_gmt":"2021-02-08T14:25:50","guid":{"rendered":"https:\/\/rccc.ro\/?page_id=2585"},"modified":"2021-02-18T10:43:25","modified_gmt":"2021-02-18T10:43:25","slug":"leading-change-in-ibd","status":"publish","type":"page","link":"https:\/\/rccc.ro\/en\/cercetare\/leading-change-in-ibd\/","title":{"rendered":"Leading Change in IBD"},"content":{"rendered":"<p><span style=\"font-size: 16px;\"><big><big><b>Building Excellence in IBD Care in Romania<\/b><\/big><\/big><\/span><\/p>\n<p><b>Main objective:<\/b><\/p>\n<ul>\n<li>To improve detection and management (therapy, education, social and professional integration) of IBD patients.<\/li>\n<\/ul>\n<p><b>Secondary objectives:<\/b><\/p>\n<ul>\n<li>\u00a0\u00a0\u00a0 To improve medical and general awareness for IBD<\/li>\n<li>\u00a0\u00a0\u00a0 To improve medical tools and skills for IBD diagnosis<\/li>\n<li>\u00a0\u00a0\u00a0 To increase and accelarate access to S-o-C therapy for Romanian IBD patients<\/li>\n<li>\u00a0\u00a0\u00a0 To improve patients&#8217; education<\/li>\n<\/ul>\n<p><b>Deadline:<\/b>\u00a02013-2015<\/p>\n<p><b>Human Organizational Founding Resources:<\/b>\u00a0Romanian Task Force (RCCC, SRGH, SRED, Patients&#8217; Association, Pharma, IBD Nurses, Imagists, Surgeons)<\/p>\n<p><small><b><br \/>\n<big><big>ACTION PLAN<\/big><\/big><\/b><\/small><\/p>\n<p><b>A. EDUCATIONAL TARGETS<\/b><\/p>\n<p><b>1.\u00a0\u00a0 Increasing Awareness for IBD:<\/b><br \/>\n&#8211; FPs awareness &#8211; meetings with FPs<br \/>\n&#8211; General awareness &#8211; media campaign: at starting Registry for IBD; IBD Day<br \/>\nResponsible: Local experts, RCCC Board\/President<\/p>\n<p><b>2.\u00a0 Improving Detection:\u00a0\u00a0\u00a0<\/b><\/p>\n<p>a) Active registration of IBD cases (new and old), hospital\/outpatients in IBD Prospect Database (National Database &#8211; a goldmine to characterize IBD and IBD management throughout Romania)<br \/>\nResponsible: Adrian Goldis, Dana Dobru, Cristina Cijevschi<\/p>\n<p>b) Epidemiologic research: Are IBD rare or underdiagnosed in Romania?<\/p>\n<p>b1) IBD Prospect (1 Nov 2013 &#8211; 1 Nov 2014; aim: freq. IBD in Romania &#8211; 10 years later)<br \/>\nResponsible: Cristian Gheorghe,\u00a0 Simona Bataga, Bogdan Mateescu<\/p>\n<p>b2) A structured questionnaire administered to IBD patients enrolled in IBD Prospect Database in order to assess the changing epidemiological factors leading to increasing incidence of IBD;<br \/>\nResponsible: Liana Gheorghe, IE Csiki<\/p>\n<p>b3) Starting a Regional Registry for IBD in connection with EPIMAD (24-26 Nov 2013); 1 Jan 2014 &#8211; starting with a pilot country project coordinated by Bucharest meeting FPs, meetings of gastroenterologists, meeting investors.<br \/>\nResponsible: Liana Gheorghe, Adrian Goldis<\/p>\n<p><b>3. Patients education:<\/b><\/p>\n<p>&#8211; Empowering patients by education, decision making, developing skills, communication, integration<\/p>\n<p>&#8211; Interactive site &#8211; ASPIIR, national and international actions aimed to counsel, educate and integrate, developing skills, relationship and communication.<\/p>\n<p>Responsible: Liana Gheorghe, Bogdan Mateescu, Cristina Cijevschi, Dan Gheonea<\/p>\n<p><b>B. DIAGNOSIS LEVELS<\/b><br \/>\nImproving diagnosis<br \/>\nAre diagnostic facilities available, properly used and equitable widespread in Romania?<\/p>\n<p><b>1. Spread of ECCO criteria for clinical approach, diagnosis and management:\u00a0\u00a0\u00a0<\/b><br \/>\n&#8211; ECCO workshop;<br \/>\n&#8211; Evaluation online at the annual meeting RCCC.<br \/>\nResponsible: All, Anca Trifan, Bogdan Mateescu<\/p>\n<p><b>2. Developing human and material resources:<\/b><br \/>\n&#8211; endoscopy (high resolution, video capsule, CLE etc)<br \/>\n&#8211; imaging + minimal invasive treatment<br \/>\n&#8211; histology;<br \/>\n&#8211; biomarkers.<br \/>\nIBD imagists, IBD surgeons; IBD pathologists.<br \/>\nTraining for young GE fellows: hands-on courses, workshops, bursaries, RCCC annual meeting session, educational site (checklist)<br \/>\nResponsible: Marcel Tantau, Anca Trifan, Cristian Gheorghe, Bogdan Mateescu, Eugen Dumitru, Gabi Becheanu, Mugur Grasu, Dragos Negru, Cosmin Caraian, Teo Voiosu, Carmen Preda, Cristina Cijevschi, Dan Gheonea<\/p>\n<p><b>3. Creating Centers of Excellence:\u00a0<\/b><br \/>\n&#8211; strict criteria, adapted for Romania;<br \/>\n&#8211; implementation;<br \/>\n&#8211; recognition;<br \/>\n&#8211; founding;<br \/>\n&#8211; audit<br \/>\nElaboration\/publication in JGLD &#8211; Amendments;<br \/>\nDiscussion\/negotiation with authorities<br \/>\nResponsible: Lucian Negreanu, Liana Gheorghe, Mircea Diculescu, Adrian Goldis, Anca Trifan, Dana Dobru<\/p>\n<p><b><br \/>\nC. THERAPEUTIC DIRECTIONS<\/b><br \/>\n<b><br \/>\n1. Upgrade IBD therapeutic protocols;<\/p>\n<p>2. Biologics registry &#8211; connected with NHIH (CNAS);<\/p>\n<p>3. Nutrition.<\/b><\/p>\n<p>Responsible: Bogdan Mateescu, Mircea Diculescu, Liana Gheorghe, Roxana Vadan, Lucian Negreanu<\/p>","protected":false},"excerpt":{"rendered":"<p>Building Excellence in IBD Care in Romania Main objective: To improve detection and management (therapy, education, social and professional integration) of IBD patients. Secondary objectives: \u00a0\u00a0\u00a0 To improve medical and general awareness for IBD \u00a0\u00a0\u00a0 To improve medical tools and skills for IBD diagnosis \u00a0\u00a0\u00a0 To increase and accelarate access to S-o-C therapy for Romanian [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":2508,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2585","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/pages\/2585","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/comments?post=2585"}],"version-history":[{"count":3,"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/pages\/2585\/revisions"}],"predecessor-version":[{"id":3140,"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/pages\/2585\/revisions\/3140"}],"up":[{"embeddable":true,"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/pages\/2508"}],"wp:attachment":[{"href":"https:\/\/rccc.ro\/en\/wp-json\/wp\/v2\/media?parent=2585"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}